Understanding options for end of life care
It is important for seniors and caregivers to understand the variety of options available for end of life care. While life can at times end unexpectedly it can also happen slowly over the course or weeks or months. The topic of end of life care can be very difficult for seniors to discuss with their caregivers. It is important, however, to remember that early discussions can decrease stress later.
What makes end of life care unique?
- End of life care is specifically tailored for people who are nearing the end of a terminal disease or condition. The goal is not rehabilitation or cure of an illness, but rather to support individuals until they pass away.
What leads up to end of life care?
- There are many diseases and conditions that can lead to the need for end of life care. Terminal cancer, chronic illnesses, organ failure, and neurological diseases are just a few examples of conditions that often necessitate seeking out end of life care options.
When is it time for end of life care to begin?
- Medical professionals are often the first people to bring up the topic of end of life care. They will often consult with the patient and family or caregivers when they believe care is warranted. This can be months or weeks in advance.
Who provides end of life care?
- End of life care is provided by medical professionals trained in this unique type of care. Caregivers both medical and non-medical also play a vital role in providing both hospice and palliative care. End of life care can be provided in a hospital, facility, the home or any combination of the three.
Main types:
End of life care falls into two main categories – hospice and palliative.
- Hospice is either home or facility-based. It may or may not be covered by insurance either in part or in whole. Hospice care usually begins within 6 months of expected end of life but can also be put into place even if a patient has more than 6 months of time left.
- Palliative care is typically facility-based and focuses on comfort rather than treatment. It is usually included with most insurance polices and can be provided at any time during a chronic or terminal illness.
(Caregivers Library)
Weighing the Options:
Many factors go into the decision to discuss end of life care and what options to choose. Some important questions to ask are listed below.
- Is life-prolonging treatment desired during end of life care?
- Will care be sought on a specific timeline or in an outgoing capacity?
- Will the care be provided at home or in a facility?
- Does insurance need to cover all or the costs?
- What types of care and service does my insurance provider cover?
- Is round the clock care needed?
- What kinds of providers are desired for end of life care (counselors, nurses, caregivers)?
- Will access to specialized technology and equipment be a factor?
(NHPCO)
Tips for discussing end of life care:
- Determine what term for end of life is acceptable
- Talk about preferences before needs
- Make a list of “do nots” to abide by
- Take breaks to avoid growing overwhelmed
- Consult the insurance company ahead of time to learn about options
- Include everyone who will be involved in end of life decisions if a senior becomes unable to speak for themselves
(The Conversation Project)
Safe @ Home Senior Care is proud to work with local hospice and palliative care organizations to provide all end of life clients with the highest level of care. For more information on how we can help you during this time, call us at 715-598-7233.
(ClearCare Monthly)