Lewy Body Dementia is a form of dementia triggered by abnormal deposits of the protein alpha-synuclein in the brain. These deposits, also called as Lewy bodies, affect chemicals in the brain which can then cause problems with thinking, memory, mood, behavior, and movement. There are two types of LBD – dementia with Lewy bodies and Parkinson’s Disease dementia. (National Institute on Aging)
Some LBD facts:
- Affects more than 1 million people in the U.S.
- Typically begins after age 50
- Affects slightly more men than women, as well as those with family history of LBD
- Progressive. Meaning, symptoms start slowly and worsen over time
- Can typically span from 5-8 years between onset and death, although spans of 2-20 have been documented
- No cure for the disease but early diagnosis and treatment can help slow decline (National Institute on Aging)
Lewy Body Dementia can cause difficulty with thinking processes such as memory, executive functions like planning, visual processing leading to hallucinations, movement problems such as tremors, stiffness and slowness, fluctuations in alertness and alternations in sleep and behavior patterns. (LBDA)
Caregivers can work with physicians and specialists to help provide LBD patients with the highest quality of life through several means.
- Routine
Establishing a familiar routine early in the diagnosis can help LBD patients to adjust. Recognized routines can lessen stress and prevent later problems as the disease progresses. It allows for planning time and the ability to make changes as needed. - Sleep
One of the effects of LBD is insomnia due to agitation. Caregivers can help establish a sleeping pattern for them by providing a calm atmosphere, dimming the lights, or playing relaxing music. - Respite, Palliative Care, and Hospice
Caregivers need to recognize early signs of burnout and take steps to prevent this. Respite care through a home agency such as Safe @ Home can give caregivers time to rest, relax, and take care of themselves. Palliative care should be discussed and implemented early. The goal of palliative care is to relieve symptoms of the disease and provide for a high quality of life. Hospice should also be researched early for those with LBD diagnosis so that when the time comes for end of life care to begin, decisions are in place and ready to take effect. (LBDA) - Education
LBD is more common than many people think, although it is often an unfamiliar form of dementia to most people. There are many resources that can help educate patients, caregivers, and family members.The Lewy Body Dementia Association advises individuals to learn as much as possible about LBD as soon as a diagnosis is made.
If you’re looking for more resources and practical ways to aid the needs of your loved one with LBD, you can contact us at Safe @ Home Senior Care. We have staff who are able to support the needs of your loved one in the comforts of home.